Wednesday, 28 November 2012

Jungle Diet

So Rosemary Shrager has come out of the jungle 2 stone lighter. Why she got like that in the first place, along with Colin Baker, isn't clear, but why don't the overweight people watching take note how much happier and pleased with themselves they are? Two weeks on rice and beans and Bob's your uncle. Cheap. Simple. Nutritious. Yes, boring as hell, and you're damned hungry, but grow a spine and some wil power and put up with it. Two weeks. And she's happier, lighter, better, healthier.  It's really a no brainer.
      As mentioned in my earlier post, I woke up on 1st January this year and decided that the photograph of me on Christmas day with the back fat and the chubby cheeks just wasn't me. The thin person was struggling to get out of plump one. I wasn't fat. Most people didn't think I needed to do it. But I did it 7 years ago after my last baby, and it was time to do it again.
    My goal was our summer holiday in Mallorca where we would be with my slim sister and even slimmer Miss Flower, who used to be our night nanny.
    So how did I do it? Well, first off I wish I'd patented my own idea of what is now fashionable, which is the intermittent fasting diet. My own version was to start the diet off with two days of fierce fasting, just to get my mind round the new regime (incidentally the French word for diet). I reckoned my biggish bod could cope with a bit of deprivation.  Otherwise it would be marching straight back to the toaster and the biscuit tin. I kept on a few treats, coffee, cheese and wine so I wasn't totally denying myself.
    Then it was basically cutting out things such as bread and chocolate, and introducing new, healthy, delicious things such as ryvita, avocado, tomato, cottage cheese, fruit, yoghurt, porridge with brown sugar, and regulating helpings and meal times. Broke all the rules. No breakfast, first meal at midday, trying not to eat after 6pm except sometimes Horlicks to stop hunger at night.
   Hmm. Might contact my editor at the Health Section at the Mail on Sunday, see what he thinks about a column?
 

Tuesday, 27 November 2012

Short Story Advice

http://www.writersworkshop.co.uk/blog/how-to-write-short-stories/

Churchill described Russia as a riddle wrapped in a mystery inside an enigma. A short story shouldn't trip you up or leave you in the dark, but it should encapsulate the magic of a critical moment within a life, and all, as Jamie Oliver says, in 15 minutes!

The constraints of time and space are actually liberating. They permit, even challenge, the writer to use its tight structure to create a character's history. Their past, intense present, and the hint of a future. Some stories are left hanging on a cliff edge, leaving you wondering or guessing what comes after. That is fine so long as it isn't too abrupt, or inexplicable. Why alienate your readers by frustrating them? Rather, leave them intrigued, wanting more and especially more from you. Some stories have a twist in the tail which is glorious especially when used in horror stories, but equally effective in a supposedly every day situation. The end should be satisfying but not necessarily trite.

Take inspiration from a snapshot in the street or out of a train window, a note or comment from your own life, news from the world around us, a crazy, sad, mad, mundane idea plucked out of an over-active imagination. So, an awkward family gathering igniting a forbidden passion. An adulterous weekend trashed by a message from home. A crippled woman giving hope to the able- bodied. Nick what you've seen or imagined, dress it, trick it out in technicolour or monochrome depending on the mood you want (I also have a cinematic commentary in the back of my mind when writing). Then load it with drama and potential, propelling it, with the tools of a handful of bright characters and realistic, relevant dialogue, in the direction of and into whatever conclusion you want for it.

So far the only novels and short stories I have published have been erotic (see my other blog, Primula's Progress). But the build up, climax, resolution and afterglow analogy of sex – the outline structure I have already mentioned, in fact - is equally useful for any story telling arc.

You have around 6,000 words, though there are no rules except in competitions, and more experienced writers will restrict their word count to a handful, or expand their story to a novella.

So, you're allowed to, indeed you should, hit the ground running. Place your character straight into the heat of their dilemma or crisis. This can be like plunging into a cold bath, or stepping more tentatively, but the central crux must fairly quickly be visible. The deceptively leisurely approach makes a later shock all the more unexpected.

The golden rule is show, not tell. So paint a picture through scenery and smell, sounds, clothing, even food, to create the atmosphere. Some initial introspection can be helpful to introduce a character's thoughts, their modus vivendi, but not through an over-arching voice that tells us what to see and how to respond.

To avoid the domineering narrator a more dynamic technique is showing a protagonist's interaction and genuine responses, however brief, with their surroundings and other characters. This will flesh them out and make them three dimensional, make us love or loathe them. Dialogue, used skilfully, is an essential tool to reveal what is happening and illustrate how characters react, but it must be realistic. Study the unfairly maligned soaps on telly for consummate script writing. Possibly the most jarring sign of an amateur author is wooden, pompous or over-written dialogue.

Dialogue and narrative combine to drive us inexorably towards their conflict and how they will resolve it. Conflict indicates a moment where a dilemma is faced, a decision or change is required or thrust upon us, like the splitting of two great rivers. A character can tackle it, however chaotically, or they can avoid it. Either way there should be a resolution, even if it is tragic, otherwise we won't have a story.

The stories in 'Stabbing the Rain', my Amazon collection, commit to fiction moments from real life: mysterious encounters in Venice, an extraordinary Christmas in Alexandria, unexpected pregnancies, lost love, diagnosis with serious conditions, all treated with a somewhat black, compelling humour. Here is the link and I hope you enjoy them. http://tiny.cc/rkqaow


Stabbing the Rain

I have reached a milestone birthday since I last wrote.  It was a larger number than I care to admit to, but it marks the time to stop waiting for that Martine McCutcheon perfect moment to arrive. Time to achieve what you have always dreamed of achieving. So as well as losing 2.5 stone this year and getting back into clothes I haven't worn since my 24 year old was born, I would also love to show the UK publishing world that short stories, as in the US, are just as formidable and compelling a genre as novels. The short story writer aims to encapsulate a critical moment (not always perfect)within a life, and all, as Jamie Oliver says, in 15 minutes!
   We create a character's history, a past, an intense present, and the hint of a future. Some are left hanging on a cliff edge, leaving you wondering or guessing.  Some have a twist - glorious in horror stories. Some are wrapped up neatly. Mine do all of those. I like them to add satisfyingly, but not necessarily tritely. We want you wanting more. Some could even build into a full length novel one day.
    So far the only novels and short stories I have published have been erotic (see my other blog, Primula's Progress).  But the sexy build up, climax, afterglow analogy of erotica is useful for any story telling arc.
   Start with inspiration from a snapshot spotted in the street or out of a train window, a note or comment sounded in your own life, something funny or touching the kids have said, comic or tragic stories from the world around us, a crazy, sad, mad idea plucked out of an over-active imagination. Then you nick it, dress it, trick it out in technicolour or monochrome depending on the mood you want (I have a kind of telly, cinematic commentary going on in the back of my mind when writing, seeing it all on screen as well).  Then load it with drama and potential, taking it with the tools of a handful of bright characters and realistic, relevant dialogue, to whatever conclusion you want for it.
     My youngest son coined the muscular phrase 'Stabbing the Rain' which is the title of my Amazon collection. The stories commit to fiction moments from real life: mysterious encounters in Venice, an extraordinary Christmas in Alexandria, unexpected pregnancies, lost love, diagnosis with serious conditions, all treated with a somewhat black, compelling humour. Here is the link and I hope you enjoy them.  http://tiny.cc/rkqaow

Saturday, 30 January 2010

I am a lousy blogger and haven't written anything since last summer. Not because I'm too busy but because I was writing articles about MS and other disasters, older parenthood etc and resubmitting my erotic short story collection which has now been rescued from the Black Lace trash can and reinstated with Xcite books, coming out in April under the name of Primula Bond, eroticist extraordinaire.

Meanwhile after much nagging from my mother I decided to take the MS in hand with some alternative therapy as well as the Low Dose Naltextrone which purports to halt the progress and certainly seems to have not made it any worse in the last year. No side effects either other than a £15 dent in my wallet every month. The leg is ok but the ankle really does turn inwards now. I can't wear any kind of heel unless pretty chunky.

And so also off to an acupuncturist, a medical doctor called Professor Lewith who also practices homeopathy. He decides against acupuncture for my heavy left leg because I'm not in pain. God, I'm so lucky not to be. He takes blood, cradles my left foot in his crotch and pushes little glass ampoules into it while I hold a kind of metal cylinder. He draws the conclusion that I need to be tested for potassium and other deficiencies. He also instructs me to stop dairy products, red meat and pork for 6 weeks. In short, je suis une vegane. Dairy is frequently the fount of all ills, but I also happen to adore butter, cream, cheese, chocolate. This is a real sentence and it gets worse as the days go on.

First the good news. Bread, mayo and wine are fine. And please God I should lose some weight. There are alternatives. Soya, for instance not to mention all that fruit and those vegetables that I hate eating. Well, the soya milk and cream are ok though separate oddly in hot coffee though not in tea. Am not giving up coffee. The cheese and yoghurt are revolting. The carob chocolate unappealing. Grrrr.

Within five days of starting this wretched regime we go to an Indian restaurant for a lunch party and though I can in theory eat most of it the meat dishes are too hot and I can't have raitha and I'm still hungry at the end of it. On the way home we go to a farm shop full of home made sausages, boeuf bourgignon and cheese cake. We buy all of them for the freezer. Surely this will come to an end? The kids are at mum's so we go out to dinner. Well, I'm a cheap date now. We go to dinner and I have to ask the poor waiter to check with the chef on the ingredients in the veggie risotto etc. Can't have a single thing on the dessert menu, not even cheese and biscuits. Home to some more wine and hopefully a long lie in.

I am lucky though. All I ask is a little piece of Red Leicester.

I don't know what happens if Dr Lewith says I should never eat dairy again. Red meat and pork I can pretty much do without, but dairy? Never to eat a slab of cheddar or a piece of buttery toast or worse a cake or pudding?

Monday, 1 June 2009

Miss Flower

My sister, devotee of a tres chic London gym, commented the other day that the yummy mummies there never talk any more about nannies any more. Is it something to be ashamed of now, the idea of paying somebody else to look after your children - particularly if you're not working? But she's right. Read any interview with a celebrity or high profile mother, and they all refer to 'my lovely lady' or 'my super Latvian/Philippina girl' or even 'my housekeeper'.
Well, I reckon that nannies of various shapes and sizes should be on the NHS. The preventative benefits, particularly against post natal depression, would save the health service billions.
After E was born I was exhausted. He didn't sleep through until he was five. My eldest, G, had slept through from 6 weeks. Nothing with E worked, and the lack of sleep came as a sledgehammer blow. So my mother offered to help pay for help when we had our third baby. No, strike that. Not 'help'. I'm proud to call her a nanny. A Night Nanny.
So this is how it went.
There are no medals for coping, Mum observes, a month or so before her fifth grandchild is due. She’s flattening gingerbread beneath a rolling pin. A family like ours, she declares, riddled as it is with neuroses, can’t afford to wait with folded hands until the house of cards comes crashing down.
E is hobbling about like the crooked man, poking his light saver at my weed-choked flower beds.
My mother should know. She’s mopped up enough neuroses in her time. To her the notion that help, paid or unpaid, is a luxury for the spoilt or a crutch for the useless is bollocks. Not that my mother uses that word. But because I’m older, finally listening, finally admitting she’s frequently right, I know it’s not only wiser but safer to seek help before my knees buckle.
Where are the new roses? E is doubtful. His tour of inspection is complete and unsuccessful, because he’s found not one healthy plant hereabouts. I look at him blankly. You said this family was riddled with new roses, he expands. His saver growls menacingly at our parched lawn.
And who’s going to thank you, Mum resumes, handing me another cheque before taking her grandson off for a day’s trampolining, when the yummy façade crumbles and you’re discovered foaming at the mouth in the baby food aisle of Tesco because there’s no more cauliflower puree?
I watch them gunning away in the topless green sports car she calls Kermit. My mother says that if you open the Bible at any page, on any day, you will find a quote that make perfect sense. As I reach for the phone to call Night Nannies, my newspaper falls open at a startling survey carried out by Net Mums revealing that three times more mothers now suffer from post-natal depression than their own mothers did. I’m not remotely surprised. I’ve suffered from enough depression and new roses to know how they can come at you out of the blue no matter how much support you have.
The survey doesn’t give cogent reasons, but they’re obvious enough to someone as opinionated as me. In a supposedly sophisticated western world supposedly liberated women are suffering not from their hormones and depleted serotinin levels but from the fracturing of traditional family support, the weight of their own unreal expectations, and the woeful lack of follow up care from midwives and health visitors who used to be round with their weighing scales if you so much as whimpered but now leave you to drag yourself off to some distant clinic if there’s anything you need to know.
I believe modern life has eroded our instincts. Why else is parenting such hard work? I’m lucky enough to have my mother ready with her ancestral hand-knitted shawl to wrap and swaddle my babies, but how many young mothers are taught even this basic custom? Not many, judging by the babies with the little flailing, grasping, loose, insecure limbs you see in buggies who just want to be tight and safe.
If it was all a matter of simply ‘tuning in’ and ‘knowing your own baby’, why are we floundering?
My instincts are reasonably sharp but my mother is worried that if I don’t get enough sleep with this new baby I’ll get depressed again, in that low grade kind of way that you yourself don’t notice but which by God everyone around you does.
At first I automatically demur, as any daughter does, however forty she might be, before a well meaning mother’s suggestion. But then I accept that she’s not suggesting a vastly expensive, wimple-wearing, 24/7 maternity nurse. (Though R visibly perks up at the idea).
No. Night Nannies offers a perfect compromise. Trained nannies come for three or so nights a week, take over the care of the baby while the household sleeps, and leave again in the morning. Eventually they train the baby to sleep through. Now, many of my friends are shocked that I did this. How could I hand my newborn baby over to someone else at night? Watch me, is all I have to say. He was only down the hall, for goodness sake, being fed with my expressed milk while I got a blessed eight hours. What's not to like?
I also wonder if my friends will think that as well as being cold hearted and unmaternal, I'm a lazy cow with more money than sense?
Again I say bollocks. Here’s some perspective. The Angel they send me, Miss Flower as E calls her, mis-spelling her name in one of many billets doux, costs me the equivalent of six months’ worth of Silk Cut. She costs me the same as a three nights’ break for two in Barcelona. Or a top of the range flat screen TV. Her hourly rate is less than most cleaners and a darn sight less than most mechanics or plumbers. Not too difficult to rearrange one’s priorities, then. And what I get is bliss incarnate that is a night nanny and a relaxed happy family who can get on with the business of enjoying our new baby.
When D is born, he initially astounds everyone by sleeping for five hours at a stretch. But on the third night, when I’m still in hospital after the caesarean and before Miss F has galloped to the rescue and my milk is meant to be coming in and R has gone home and the baby is crying in his Perspex fish tank, I’m sobbing into my kimono. It’s one o’clock or thereabouts, the dark dozy time of night when everything happens in a hospital. Door buzzers, panic buttons, telephones, yacking nurses, flatlining -
I stumble about in the corridor outside my side room. The swing doors are pinching up snatches of real life behind departing visitors. I could just slip through. How long before anyone would notice? How far would I dare go? Would I be warm enough out there and what would I do for money? What about D ? His little arms and legs flailing as the swaddling came undone. Tongue tight and quivering like a cat's. If I got far enough outside the hospital, down the road, I wouldn’t hear him any more.
Someone else would come to stop the crying. She would lift him and rock him, glance round for his mother. Maybe she’d snip the tag off his wrists and ankles so he wouldn’t bleep at the exit like stolen shopping. She’d tuck him under her overcoat, a dead give-away in this heat, the police would later say, like a suicide bomber. She’d scuttle under the CCTV cameras, maybe even bump into me as I lumbered back inside.
But he’d be gone anyway. Only a tiny dent in the mattress where his head had lain.
A thin, blonde care assistant comes softly in to my room. I’ve pressed the button for a midwife, but this woman comes instead. She has a badge which says Carol or Cate or something. After trying to make sense of what I’m saying, she pads away and comes back with a carton of some magic potion which turns out to be 4oz of formula. Heresy! I weakly remember the mantra that thou shalt never give a bottle to a baby who is breastfeeding as she lifts D up for a robust cuddle. But I’ve been attached for hours like some dairy cow to the standard issue mechanised breast pump which whirs and roars as if it’s generating power for the whole of North Hampshire, and still only a teaspoon drips out. It’s my age. I’m dry as an old stick.
And talking of cows, it’s now a bottle of delicious Cow & Gate which the lovely care assistant is rubbing sensuously across D’s lower lip. And he devours the lot. Then he sleeps. And so do I. And the spooky thing is that when I ask about her, nobody has heard of a thin blonde care assistant called Carol or Cate .
But there are more angels, because the night we come home from the hospital D refuses to settle. Weariness mixed with panic sets in as the mew rises to a yell and we can’t do anything to stop it.
We’re pacing uselessly about, wondering like first timers what on earth to do. Time was when my hand would have reached for the Contented Little Baby Book, but somehow the recently bleached hair and litigious bent of its author has stripped it of its homely appeal. No matter. Suddenly this Renault 5 rockets through the balmy May evening, up to the house and out leaps Miss Flower, a vision in skin-tight jeans and lip gloss.
Slim as a whippet, she bounces through the front door ready to party. She’s young enough to be my daughter but there’s not a second’s hesitation as I hand the baby over. She scoops D into her arms, quite properly exclaiming at his gorgeousness, introduces herself to my other two sons, agog with admiration (‘she’s fit’ mutters my fourteen year old as G was then), asks where the fridge is with the expressed milk, and informs us exactly how she plans to operate.
And operate is the word. Precision is also the word. Regime. Flexibility. Also routine. All from the get go. I’m excused of being a bristle-lipped sergeant major at the age of 42 as I was then, but this 22 year old girl? She’s not only agreeing with me, she’s insisting on all of the above. She may have been born at the dawn of the Eighties when I was a fresher propping up the college bar but she shares my Sixties-bred notions of discipline and order.
That first night she orders me up to bed. I don’t need telling twice. Bed is the temptress that constantly calls to me, but I never spend enough time there. Bliss. I trudge up the stairs. Some mothers insist on the night nanny waking them so they can feed the baby, but what on earth is the point of that? There are four other nights when you can totter about in the dark breastfeeding for hours. Why do it when your nanny’s here?
The bedroom shuts behind Flower and my bemused baby. Her reign of mercy has begun.
I’d be worried the children will end up loving her more than they’d love me, remarks one friend who patently disapproves of my extravagance in introducing a nanny into my weary life.
Who could blame them? I reply, studying my night nanny's list of do’s and don’t’s for the night she’s off. She’s miles nicer than me. My friend is looking askance.
Look, however gorgeous the nanny is, I'm their mother, warts and all. I glance about because the playroom of mummies has gone deathly quiet. They’ll always love you best, whether you deserve it or not. But what’s wrong with sharing the care?
They're not convinced. Alright, I try again. What’s wrong with admitting defeat? They put their coffee cups down carefully, and sit up. It’s always good to hear someone else isn’t coping.
Am I a less caring mother because I hand D over three nights a week to a lovely, loving girl who knows exactly what she’s doing? My friend shakes her head. So what’s not to like?
She shrugs, tucking a limp strand of hair behind her ear which hasn’t been washed since her baby was born four weeks ago. Your upper lip can be as stiff as you like, I continue, warming to my theme. And I add meaningfully, as my friend hoists her own baby out of his Apache sling for another feed, it’s not a competition, you know.
I don’t seem to be able to sell the idea to my friends, but then they’re younger than me. More robust. More stubborn. More foreign to the idea of 'help'. Whatever. For seven weeks we have the luxury of Miss Flower's cheerful arrival every other night or so, when she takes over and I sleep. In the mornings she gets our three year old up as well - as E was then - teaches him to dress himself and to chant the days of the week, makes him pieces of toast sculpted into MG BGTs, and brings me a clean, dry baby along with a cup of coffee before disappearing in a flurry of Chanel and a jangle of bangles.
What about sleep training? I ask her, when the time approaches. Isn’t it cruel?
There is no cruelty here, she says. You can have eye contact with or cuddle a baby or child too much, except maybe when it's twelve and you're embarrassing it in front of its mates.
Don't listen to the people who think it's cruel to put a child out to air, either. Putting children out in the garden in all weathers, incidentally, was a practice employed through rain and shine, war and peace, by generations of my own great-grandmothers, grandmothers, mothers and me, with resulting legions of frankly larger than life grandparents, uncles, cousins and siblings to show for it. In fact, so securely was I strapped in and so soundly did I sleep outside that when aged a month or so I didn't stir inside my little harness even when my Silver Cross pram hurtled across the lawn one particularly breezy day and tipped upside down in a rose bush.
Shame I never slept at night until I was about two, what with all the projectile vomiting, but that's another story – one which my mother still shudders to recall...
Anyway, back to Miss Flowerwho has not, despite her vigorous views, sprouted a snaggle tooth like Nanny McPhee. Or some of those stiff, stubborn hairs which have no business jutting out of a smooth young chin. In short, not the aforementioned harridan. She's still as young and pretty as ever. So she plants her hand on her hip, the hip that doesn’t have D balanced on it. Anastasia, she says, shaking her head. How can it be cruel to let him cry for a little while, comforting but not stimulating him, letting him know you love him but that night time is not for play?
How do you comfort him, I ask, watching her cutting E's toast into mini Mercedes.
Hold his feet. Works best for tiny babies. She hands my baby back to me. Getting the chassis and the Mercedes logo is proving quite difficult on this piece of toasted wholemeal. If you hold their feet they quieten down. They can’t see you in the dark, but they know you’re there.
Hmmm, I say. People say they should sleep with you in your bed. Never be left to cry. Be fed when they want -
She gives the plate to E and turns to me. Do you want your home to become Liberty Hall? she queries in the kind of kindly but stern voice my Maths teacher used when she knew full well I didn’t know the answer. Since when did the little darlings know best? Do you want the lunatics to run the asylum?
She’s preaching to the converted, but I’ve got to have a battery of arguments to relay to my papoose-toting friends. What about putting the baby in a dark room on its own?
She is getting ready to go, that dreaded moment when she will zoom away down the road. She slides her feet into her sparkly flip flops. What do babies get used to in the womb? she tests me. Flashing lights and noisy mates? They need privacy, just like you and I. Then the cuddles under the duvet in the mornings are that much more of a treat.
Sleep training starts when D is five weeks old. He’s not a fragile five days’ old newborn, and the process takes precisely a week, with never more than twenty minutes of full-on crying and that only lasting two nights. He can keep going on a good big feed taken at 7pm, whether by breast or more frequently by bottle. Hardly boot camp.
A clockwork household. That’s what you want, says Flower on her last day. I’m leaning against the door, wondering if I can let her tyres down or take her spark plugs out to stop her leaving, because it’s her last morning. Think of it like a Swiss railway timetable, she says, packing hairbrushes, lipstick and baby wipes into her minute sparkly handbag which I swear is like the carpet bag in which Mary Poppins fits things like zoos and lamp posts.
You know, she says, pushing me gently aside. When things happen at the same time every day. Everything else may be going wrong, but if you stick to what I’ve told you everyone will be happy. That goes for a fretful baby (D’s eyes soften as he gazes at her) as well as a fretful mother.
Miss Flower says I’ve got to walk round the house lashing my whip, I tell R later, when I’ve recovered from the shock of her leaving. My husband beams.

Wednesday, 20 May 2009

A faux pas in Lourdes

One of the things that worries me now that my MS is out in the open is people pussy footing round me, afraid of saying something tactless or inappropriate, dropping bricks, making faux pas, watching what they say. I don't want that. I want jokes to be made, the piss to be taken. No egg shells. No offence intended, none taken. If I want to take the mickey out of the drab, naff image of disability and old age (cheap adverts for walk in showers, hideous shoes, bizarre folding chairs, unflattering garments) and drag glamour into it, then I will. In fact, I'm thinking of starting up my own group for the disabled to militate against regulated mealy mouthed political correctness. It could be Disabled Against Correctness. DAPs. Cripples Hating Interfering Politics. CHIPs.
When I was sixteen I went for the first time to Lourdes as a volunteer with a group of fellow Catholic school kids. It was a very hot July and I had a very small pink suitcase which got lost at the airport and wasn't returned until the day we left. I had nothing but the clothes I stood up in. No toothbrush, no tee shirt, no shampoo, no knickers. Zip.
And what do you think I said as I climbed grumpily onto the coach , which had been waiting for hours to take us in to Lourdes while I filled in forms? Bear in mind that we were a bunch of self satisfied private school kids but in the bus with us were a group of people suffering from various forms of disability and illness, from some adorable Maltese boys with Down's and other problems, arthritic old ladies, one woman terrifyingly close to death from cancer, and, yes, some younger malades in varying stages of MS.
Livid that I had no anti-perspirant, no hair brush, no spare lipstick, I stood at the front of the bus, and groaned loudly to my friend: 'God, I'm going to be crippled without my suitcase.'
And what do you think those sick people did. Purse their lips? Tick me off? Complain to some minorities board for compensation? No. They shook their heads in sympathy, those that could shake their heads. Murmured platitudes for my plight, those who could speak. And then laughed. All of them could laugh. We bumped through the mountain roads and into the strange holy, totally misunderstood world that is Lourdes, with its constant prayers and processions, its crocodiles of wheelchairs, its gharish shops selling illuminating, flashing Our Ladies, its limitless hope and inspiration, and its miraculous waters and this lovely collection of malades spent the journey offering me stubs of lipstick, spare toothpaste, moth-eaten flannels and a lot of useless advice.
My week in Lourdes humbled me in every way. We worked like dogs pushing wheelchairs, sitting up all night, learning how to change catheter bags, attending endless masses and dunking desperately sick adults and children in the holy waters. But we had a ball. We learned to appreciate how fortunate we were, able bodied, young, independent, free and so on, but far more signficantly how fantastic these sick people were, who loved every minute they spent with us, our youth, our liveliness. Our 'favourites' would wake up each morning and ask us all about our drunken antics in the 'Brancardiers' bar the night before (named after the braces that certain special helpers wear with special loops to hold stretchers), and told us that they there weren't hoping for a cure. Just for a week away from their lonely, limited lives at home and for some social and spiritual nourishment.
On a subsequent visit, we all witnessed our own minor miracle, when my sister, who had a weak leg not ironically from MS back then but from a hideous motor bike accident she'd suffered a few years previously, was struggling to push a wheelchair up a mountain road. The lady in the chair, who had been doubled up with arthritis, said calmly to my sister, 'Here, darling, you're exhausted. It's my turn. Let me get out and push you up this hill for a while. ' My sister was so tired she said,' Ta' and collapsed into the chair, let the lady push her for a while, and then couldn't undersand why, when they reached the inevitable bar where the others were gathered, everyone was staring, open mouthed. As far as I know that lady's health continued to improve and I hope 30 odd years later, that she's going strong...
There's no easy way to describe it without sounding corny, but spiritual is the word to use abuot Lourdes. Spiritual, and an absolute blast. We all went home changed, if not cured. Not only had I acquired three boyfriends but had learned all about hard work, hope, and holiness. I also learned just what MS looks like from the outside, in its varying stages including end stages. That's why I have no illusions about how things could be for me in the future.
Would I want to go back to Lourdes now? Well, I don't think I'd cut it as a helper, at least not for the heavy work. And to be honest, right now, I'm not prepared to think of myself as a malade. I'm not strong enough to make that shift from able bodied to not able bodied, and I am quite honestly shrinking away from joining the ranks of the desperately ill people in wheelchairs or voitures or even stretchers.
Incidentally one of the dear friends I made while working in Lourdes was John Monckton, who sadly made the papers a couple of years ago because he was the banker murdered in his front hall by two bastards who were not being supervised properly by the Probation Service. I'll never forget a tipsy discussion we were all having about various holy things, and I asked what was the odour of sanctity. 'Easy,' John said, with his shy, snuffling laugh, 'it's Chanel No. 5.'

Tuesday, 19 May 2009

I've published and not been damned

Various reactions when I finally come clean to my family and the world about the MS. I kept it to myself for as long as possible to get my head around it. My husband R knew. My rock. My sister, who also has MS, knew, as did her husband, and really wanted me to tell people straightaway. I guess the knowledge was heavy for her to hold without sharing it. But I wasn't ready to hear the words from myself, let alone anyone else, and couldn't face the weight of other people's anxiety.
But with a family holiday to Hope Cove, Devon coming up at the weekend, our bi-annual trip to our lovely all mod cons but rustic retreat which tends to involve hearty walks to and from the sea, and to and from the pub, I knew that my dragging leg and reluctance to exert myself would be noticed and analysed as more than normal laziness, and then it would all come out at the wrong time and spoil our lovely break.
So we told my parents three weeks ago. Or rather, I bottled it and asked my R to tell them for me. Just like I got my sister to tell them when I was pregnant with no prospect of marriage. They were, as always in a crisis, shocked and worried, but calm. Accepting. Itching to get their hands on some research, information, advice, remedies of any kind. Proud that as a family we tend to keep our heads when all around are losing theirs. Chins up. Best feet forward etc. Makes us sound like some kind of marching band.
They already do so much, fetching the kids from school once a week, having them to stay, generally giving guidance and wisdom, helping pay for holidays etc, that I really didn't want this to burden them for the remainder of their days. But while they're hale and hearty, in fact, haler and heartier than me, I can show them I'm fine, and I intend to let them help me all they like!
Once they knew, I felt able to go really public. I mean, into print. First I had my hair cut. It's getting shorter and funkier, the grey roots resolutely covered in a kind of racy red. Not for me an entire column devoted to the rigours of going grey. I intend to do it with scarlet highlights and maybe the odd exotic turban when the time comes.
I submitted, and had accepted, an article by the Daily Mail, printed today. They sent a photographer to take grinning pictures of our little family. And in fact in the end used a family snap I'd emailed them just to give them an idea what we all looked like.
Anyway, the article is just talking, much as I am in this blog, about my life and how the symptoms all started and the diagnosis felt and how important it is that I keep going for my young family, how I'm going to deal with it. And I was paid to write it! Hurrah! There's our Christmas holiday to Austria paid for. And twice hurrah! I now, after twenty odd years of trying to wriggle out of it, even being pregnant on one occasion (pretty drastic I know), have a valid excuse not strap my feet into boots that look like plaster casts for the Elephant Man and slither down a cold, hard mountain! Can just sit in a beautiful chalet hotel staring out at the snow and my loved ones, tapping on my laptop, slurping schnapps and swallowing schnitzel.. but you'll have to wait for that instalment. Suffice to say it's paid for now and in these crunched times that is a real triumph.
I showed the article to my immediate boss at work, also a very good friend, who already knew about it because I'd let it slip the day I had my diagnosis. As well as a barrister or two up at the Crown Court she also showed the article to the others in the office who had not known before and were great and seemed really moved by my story. My fellow secretary, P, said it inspired empathy and she couldn't get it out of her head. I was thrilled, and told her so. She has summed up what every writer aims to do, to affect, to connect, and to stay in people's heads just like the Kylie Minogue song.
Our office is up a very narrow, dark set of stairs that one of our agents said reminded him of a bordello he visited when he was an undercover copper. Now my colleagues are all insisting that I should let them trundle and tumble down them to answer the doorbell when it rings. I said now that I make up their 'disabled' quota they should instal a Stannah stair lift. Which gave rise to much merriment on the subject of how naff disability and old age adverts can be. You know, those adverts in Saga for retirement homes and bath tubs where you open a little door and take a bath still in your bathing suit. Or reclining chairs and beds that practically fold you in half, or presumbly hurl you into the air like an ejection seat in an RAF jet, and two for the price of one. The hideous shoes that look like Cornish pasties my sister and I already refuse to wear. The pudding bowl haircuts. The elasticated slacks.
Anyway, one of the partners, a shy gentleman not given to sentiment, said an incredibly sweet thing. He'd shed a tear, he told me, when reading the article. And though he'd noticed my slight limp on occasion, he said he was relieved to see that the MS hadn't affected my good looks!
And then a tougher conversation, with my 20 year old son. I had told him briefly on the phone last night, in case someone saw the article and mentioned it before I got a chance, and then as luck would have it he was coming home from London anyway this very day to go with us all to the dentist - eccentric arrangment, I know - but also what a fortuitous day it was that I was able to see him face to face. Yes, he was more upset than I thought he'd be. He's a cool dude, beautiful to behold, but a sensitive and thoughtful dude and more so the older he gets. And if I'm boasting about how gorgeous my son is, well, I'm usually the first to castigate boastful mothers, but this time I'm allowed. I don't want this to make a difference to you, I said to him. But it does, he replied. Why? Because it means I must work hard, get a really good job, in case I have to help look after you.
Then he offered, for the first time in living memory, to peel the spuds for supper.
I guess, motherwise, I must have done something right.